Great Ormond Street Hospital has a number of very useful resources:
An information sheet about BWS. This can be found at:
gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/beckwith-wiedemann-syndrome-bws
An information sheet about the Macroglossia Service for children with BWS. This can be found at:
An information sheet about tongue reduction surgery. This can be found at:
gosh.nhs.uk/medical-information/procedures-and-treatments/tongue-reduction-surgery
An information sheet about the clinical outcomes of tongue reduction surgery. This can be found at:
gosh.nhs.uk/health-professionals/clinical-outcomes/beckwith-wiedemann-syndrome-clinical-outcomes
To donate to Paddy MacLachlan for his Channel Swim aiming to raise £10,000 for Great Ormond Street please see his just giving page at